Once again I am joining Jen Conversion Diary for 7 Quick Takes.
1. It has been a very long week. I forget how out of practice I get or we get when we do not live at Children's hospital (i.e. appointments every day in the week). I think in the back of my head, I always think these multiple appointments day in and day out are a thing of the past. Then we find ourselves with multiple appointments everyday, I am shocked at how everyone of us act so frozen, unimpeded at doing not much more then making it to the appointments then home. They literally suck the life out of you.
2. If you are reading this on Friday, say a prayer for us. Liam will be in surgery. It is a good day for us. He is finally getting his tube removed. A simple procedure turned much more complicated by the length of time he has had his tube inserted for and the unknown of the nodules in his lungs. Of course surgery has fallen once again on a weekend that TFLOT has to work. But in the long run it is much better as TFOLT gets antsy waiting and pacing. He is better off being at work. We have got this whole routine down of me staying at the hospital, the other kids being cared for and TFOLT working. I hate that we have a routine for this. It makes me want to scream and cry. No parent should have a surgery routine. There should be laws, public out cry! The bright spot is I can pass my time away at Starbucks in the hospital while waiting for Liam. I am sure he will brush me off when they wheel him away being the mature 14 year old boy he is, too old to hug his mom. I do not care, I will hug him anyway. Always at that point of seeing him go off, I know I will have to fight back the tears. I will let the whole staff know that is my boy, the only Liam, we have. We need him please take good care of him.
Of course there is a young girl who works now at the surgery check in. She has yet to give us misinformation in the last year that she has been here. When we first started down this road a million and one years ago, the old lady at check in told us all the time, oh one hour that is all your are schedule for, easy. Ha not one time has it only taken us one hour. One time, it took 8 hours. Why yes, I was a complete basket case at that point. You would think at this point in my life I would learn that zen of being patient.
3. Just to add to our totally fun life our youngest will be starting 20 day course of steroids. God help us and all our friends. We are praying that it will be much different for her compared to the boys at the same age. If it is not, we are praying for her mama and that she survives as we all know TFOLT will be at work. It is not looking good since I am already speaking in 3rd person.
4. On a totally different note: So I am a coffee snob. A huge coffee snob. I know that is total news to all my friends out there. I will not drink old coffee, bleh. I will only drink coffee made from fresh beans. I know the beans are good for 7 days, but I will stop drinking the coffee made out of the beans by day 4. I will then go without coffee for 3 days rather then use old beans. This past week, I made the greatest discovery, home made creamer that has nothing fake in it. I gave up the store bought stuff about a decade ago. Now I can indulge to my delight. It was such a huge discovery for me. So now I can tackle the hard things in life whatever those maybe.
5. I am so ever grateful to Amazon for giving us the gold thingy for owning a kindle fire. I quite sure at this point that gold thingy is their official advertisement slogan. The kids have been playing monopoly all week long as we wait literally for hours for the appointments.
6. I am hoping this weekend will include a Dick's coke. I am longer a coke head as it has been almost 6 months since I gave it up. I have tried it exactly 4 times in the past 6 months. It was gross. I am hoping beyond belief that it is not true about Dick's. My heart will be broken if it is.
7. M&M I recently went to visit kitties in kitty jail waiting to be adopted. Half of the cats in kitty prison were given up because their owner had died. There was one sweet gem named Orencia. We would have taken Orencia home with us based on the name alone. Orencia is a name of a arthritis drug. I am speculating his previous owner knew a lot to about this disease based on the name. Unfortunately, Orencia needs to be an only kitty. We hope someone adopts him soon.
Please pray for my family since next week will only be that much more difficult then this one. Or better yet pray for a cure for this disease.
No comments:
Post a Comment